Welcome to My Personal Page
Thank you for donating to help me reach my Walk to Defeat ALS fundraising goal, in support of Dan and his family!
The Walk to Defeat ALS raises funds to support those affected by ALS and to spread awareness of the urgency to find treatments and a cure.
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone, and presently there is no known cause or cure.
That’s why I’m walking. To change the statistics. To bring help and hope to those living with the disease. To support the caregivers who help their loved one fight this disease. To ensure that no one ever hears the words: “You Have ALS” again!
The past two years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families. In April of this year, the FDA granted accelerated approval for Tofersen, a gene-based therapy for people with ALS. This is the second approved treatment for people with ALS in the past year, and the 3rd in the past 6 years.
But, we can’t stop now! The key to a cure starts with all of us. Please consider walking with me or making a donation to my team. With your help, we will be able to make a difference in the lives of people affected by this disease.
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